Mono...whatever

    I really can't understand where Mono comes from. I had to get my blood taken for (1) Dr. R. - he wanted to see where my liver and kidney levels are. (2) Dr. L. - he is my Endocrinologist. My levels were good, so I only have to see him once a year now.
   While I was at the Lab, I asked to get my results from last month. There were negatives and even more positives. (deep long breath) I then stopped at the radiology place to pick up the report and the disk from them. The report didn't say anything. That was good.
   When I got home I looked up all of the acronyms. It's doesn't seem like mono, but it does have to do with my compromised immune systems. It does also have to do with needing to see the Infectious Disease doctor. I go tomorrow. I don't know...I'm freaked out and tired of feeling this way. I don't know what to say except, I want to find out and I'm scared.

And These Are The Days Of My Life

   I had nothing to do today, no doctor appointments, nothing! I needed this. Since I talked to Dr. R. about going down on my Tegretol, I started today, he said since I'm at 800mg, I have to go down slowly. Starting by going down 100mg every 2 weeks until I'm at 500mg. Then I need to see him in 6 weeks and I'll have to stay at that level for awhile. But he said if anything feels weird call him immediately.
   I called Dr. G's office and asked them about the referral to the Infectious Disease Doctor. Why wasn't I given the referral in the first place, then I could have made the appointment on Monday. I called and made the appointment for October 22. I mean how can I have had Mono this entire time and not infected anyone? I guess I'll have to wait and see what he says I have. The office is on the way other part of town, which sucks but I need to find answers. Wait...this sounds oddly familiar. I think for the last almost three and a half-years I have been saying that I need to find answers. The medical community gets paid, if they think not very much, then the patients can't be blamed, because they agree to take my insurance plan.
   My dad keeps saying that if I say 'I'm losing my insurance' then I would get a quick answer. I just laugh, he's funny. Also, when my Grandpa was alive he would always say you have to make sure what they are telling you the right thing. I respect some of my providers that take the time to listen and care, really care. Another day is over.

Finding Answers

   My day started off crazy! M woke me up as my alarm was going off. I opened my eyes and it was a weird awaking. This was THE DAY I was going to get my results. I got ready and took M to school. B had to be at work BWW the same time I had my big appointment with the Neurologists, so I dropped her off early. J met me there. On my way over I had a gut feeling that Dr. I. did not send over the results of my EMG from last week. So I called and his office said they will look at it and then call me back. I knew they didn't do this, they just keep dropping the ball. I arrive at Dr. G's office  and no they didn't have the results. As soon as the Nurse says that, my phone rings  and it's Dr. I's office. She said that he didn't even do the report yet. Great! Dr. G. comes in and with his strong  Russian accent says that I do not have MS. Thank god! But what I have mimics the MS symptoms. He said that I have Epstein Barr Virus. Basically Mono or The Kissing Disease. But then he said I have to refer you to an Infectious Disease Doctor.