I've been hanging in there...I guess just waiting. It feels like I'm waiting to see about life. My life! I'm in like this daze. I have had more pain some days, more than others. The odd pain in my left arm seems to catch me off guard. It will ache so bad and even if I lie down it feels so heavy as if it is falling off. I don't know what will help it.
We made our reservations at the hospitals hotel and, WOW it's only less than 2 weeks away. I had my appointment with my Dietitian. Since I've been sick I really haven't eating very well. She suggested that I try the Ensure drinks, I thought yuck! I need to give my digestive tract a rest. , but I needed something, so when I went to the store I got the Homemade Vanilla Milkshake flavor. I have to admit it's pretty good. She said that I should drink 4 oz twice a day. I can do that.
I have been helping out in Madison's classroom some. The kids are funny and it's a nice change when I'm feeling good. So far I'm the only parent who helps out in her class, so I get to do spelling tests. Thank goodness it's easy words! LOL!
It's been slow since no doctor appointments, but I have 2 this week. We'll see.
ATN
Wear Teal
Monday, October 31, 2011
Monday, October 24, 2011
Is This Even Atypical Trigeminal Neuralgia?
Sick, Sick, Sick! I've rested and slept, I've laid around and slacked. On Friday J took off so that we could spend the day together since our 7th anniversary was on Sunday. I woke up and seemed to finally be feeling good. We had to 1st spend some quality time at the DMV so that J could get his license. Then we went out to eat. After we headed over to get my MRI results. That's where the day started to go bad. We made it there and I was feeling sick again. Are you kidding me? I have been eating lightly but I guess my choice in luncheon spots was too greasy/oily. We got the reports and came home. I laid down and it seems as if I just got up this morning. I'm telling you I have become great company. Yesterday I opened my eyes and J asked me if I would like him to go get donuts. Those didn't sit so well either. I fell back asleep until he got back home. I woke up ate and was asleep again until about 6pm.
When I got my head together last night I read the MRI Reports. I guess that's why they don't send you a copy. You'll freak yourself out. It read 'Right Frontal Lobe Developmental Venomous Anomonly'. What the crap is that? Is that new? I put in the disk and went through 240 pictures over and over again. I see it. In short, from my research a DVA is a puddle of some sort. How I am understanding it, it is when the blood vessels do not have any where to flow through to and it can cause a stroke or hemorrhages. This is not so rare, it actually is something 2-5% of people are born with it. Some so no symptoms at all, and with others it is only found when looking for something else. Symptoms are arm and leg weakness & pain. Sounds similar to my new symptoms, but facial pain was not listed. I'm not going to worry until I see my neurologists before we head to UCLA.
When I got my head together last night I read the MRI Reports. I guess that's why they don't send you a copy. You'll freak yourself out. It read 'Right Frontal Lobe Developmental Venomous Anomonly'. What the crap is that? Is that new? I put in the disk and went through 240 pictures over and over again. I see it. In short, from my research a DVA is a puddle of some sort. How I am understanding it, it is when the blood vessels do not have any where to flow through to and it can cause a stroke or hemorrhages. This is not so rare, it actually is something 2-5% of people are born with it. Some so no symptoms at all, and with others it is only found when looking for something else. Symptoms are arm and leg weakness & pain. Sounds similar to my new symptoms, but facial pain was not listed. I'm not going to worry until I see my neurologists before we head to UCLA.
I added one of the MRI pictures that shows alittle of what I'm talking about. Plus I think it's right in line for Halloween with my big eyeballs. Until I am completely feeling better I will stick with soup. I went to the store and stocked up on plenty.
Wednesday, October 19, 2011
It All Started With A Sneeze
Do you ever think back and say to yourself I remember where I was where...?
Last week Lil' Miss M was talking to me and she sneezed right on my face. I told her, "Cover your mouth, I'm going to get sick". And there it was! As Monday came to and end I felt bad. This new finger/arm thing along with my face hurting and I was starting to feel sick to my stomach. Gross! I did talk to the scheduler from Dr. M's office at UCLA. She had to talk my into making the appointment. Here were are, almost 9 months ago I was told about this time, but here I am. In the middle of November J, M and I will take a small family vaca over to California to see what they have to say. I mean he is the BEST of the BEST and that is what I wanted, but I'm so scared. We decided on UCLA because all of the doctors from all of the other institutes came from there. I don't really want to fly, and it's only a 4 1/2 hour drive. I do see my neurologist again before I go- but he's only going to tell me if he sees something else.
I woke up on Tuesday and was so sick. My throat was burning, I had the chills and diarrhea. I would never mention this but on this day it sucked to have this. Later in the afternoon I was scheduled for my two MRI's. I was in the bathroom all morning. I got up and decided to put some make-up on and I would feel better that didn't work. I drove to the Imaging Center early and was still in the bathroom. YUCK!! I looked in the mirror as I was washing my hands and thought, 'Is this my last day? Is this how your last day on earth feels?' A lady comes out and calls my name. I follow her back dreading the next 2 hours. I change out of my top and into a gown, then go into the the room. I told her I haven't been feeling good the last couple of days. She has me get up on the table and lay down. She gets my head situated and I start to go into the tube. She goes to the other room and I press the panic button, I thought I was going to get sick. So poor her she pulls me out and I sit up. I didn't get sick but I was feeling bad, bad because I was sick and bad because I was a pain in the butt. She was so nice and so patient. She let me sit there for a few and got a washcloth for my head. I laid back down and just tried to breathe. We started with my neck so I was able to keep the cold washcloth on my eyes and head. I was able to get up between each change to go to the bathroom. It ended up to be just over 2 hours and I left. It was almost time to get M so I went to the school. As I sat in my car I felt worse. I decided to just get her out 15 minutes early. As soon as we got home I went upstairs and got a washcloth and laid down not moving until I went to bed.
I woke up today and took M to school and headed to the doctors (I called on my way to the imaging center yesterday). I was sit feeling bad and stuffy. I saw the nurse practitioner and she said I had a sinus infection, left ear infection and maybe a mild stomach virus. I just had to laugh...because why wouldn't I get sick? I headed to the pharmacy and by the end of the day I was stuffy, but the stomach thing was kind of gone (oh thank god!).
On another note, yesterday, when J got home he noticed that there was a voice mail. It was from a man that was going to help me with my Social Security. Again today when I got home there was another voicemail from him updating me. Thank goodness. This was the result from a letter that I wrote the State Senator in August. It's at the federal level now but this man works for the first guy and is going to see this through. Aaaaahhhhhh! At least something good is coming from this.
I met 2 very nice people over the past two days. The lady from the imaging center and the guy from the Legislative Council Bureau. It started from a sneeze and will end with progress in all of my work.
Last week Lil' Miss M was talking to me and she sneezed right on my face. I told her, "Cover your mouth, I'm going to get sick". And there it was! As Monday came to and end I felt bad. This new finger/arm thing along with my face hurting and I was starting to feel sick to my stomach. Gross! I did talk to the scheduler from Dr. M's office at UCLA. She had to talk my into making the appointment. Here were are, almost 9 months ago I was told about this time, but here I am. In the middle of November J, M and I will take a small family vaca over to California to see what they have to say. I mean he is the BEST of the BEST and that is what I wanted, but I'm so scared. We decided on UCLA because all of the doctors from all of the other institutes came from there. I don't really want to fly, and it's only a 4 1/2 hour drive. I do see my neurologist again before I go- but he's only going to tell me if he sees something else.
I woke up on Tuesday and was so sick. My throat was burning, I had the chills and diarrhea. I would never mention this but on this day it sucked to have this. Later in the afternoon I was scheduled for my two MRI's. I was in the bathroom all morning. I got up and decided to put some make-up on and I would feel better that didn't work. I drove to the Imaging Center early and was still in the bathroom. YUCK!! I looked in the mirror as I was washing my hands and thought, 'Is this my last day? Is this how your last day on earth feels?' A lady comes out and calls my name. I follow her back dreading the next 2 hours. I change out of my top and into a gown, then go into the the room. I told her I haven't been feeling good the last couple of days. She has me get up on the table and lay down. She gets my head situated and I start to go into the tube. She goes to the other room and I press the panic button, I thought I was going to get sick. So poor her she pulls me out and I sit up. I didn't get sick but I was feeling bad, bad because I was sick and bad because I was a pain in the butt. She was so nice and so patient. She let me sit there for a few and got a washcloth for my head. I laid back down and just tried to breathe. We started with my neck so I was able to keep the cold washcloth on my eyes and head. I was able to get up between each change to go to the bathroom. It ended up to be just over 2 hours and I left. It was almost time to get M so I went to the school. As I sat in my car I felt worse. I decided to just get her out 15 minutes early. As soon as we got home I went upstairs and got a washcloth and laid down not moving until I went to bed.
I woke up today and took M to school and headed to the doctors (I called on my way to the imaging center yesterday). I was sit feeling bad and stuffy. I saw the nurse practitioner and she said I had a sinus infection, left ear infection and maybe a mild stomach virus. I just had to laugh...because why wouldn't I get sick? I headed to the pharmacy and by the end of the day I was stuffy, but the stomach thing was kind of gone (oh thank god!).
On another note, yesterday, when J got home he noticed that there was a voice mail. It was from a man that was going to help me with my Social Security. Again today when I got home there was another voicemail from him updating me. Thank goodness. This was the result from a letter that I wrote the State Senator in August. It's at the federal level now but this man works for the first guy and is going to see this through. Aaaaahhhhhh! At least something good is coming from this.
I met 2 very nice people over the past two days. The lady from the imaging center and the guy from the Legislative Council Bureau. It started from a sneeze and will end with progress in all of my work.
Sunday, October 16, 2011
Are You Kidding Me?
It's been a tough week for me, and when I say WE, I mean J and M too. It seems as if when I have a hard day it rubs of on my family. :( I went to go see my GP the morning after the visit to the the Pain Management Doctor. Now I haven't really connected in the past 2 visits with him, but when he came in the room and said "You had me really worried..", that made me feel like a person. He explained that my blood pressure was fine today. Either they misread my blood pressure or I was in alot of pain. I told him that I was in alot of pain yesterday. We talked about everything that has gone on since I was last in. He received everything I told him very well. And because I had to get to my appointment with yet another neurologist he got me out of there in time.
As I started my trek way across LV, I kept telling myself to keep an open mind. I got lost getting there and why wouldn't I, I didn't print out a map. But I got there on time. It was in a nice neighborhood, but the office was old and nothing special about it. That was funny because the doctors with the nice offices don't do anything & the docs with just the basics seem to know what they are talking about. It took the usual time...forever...and an older man came in. He listened and asked questions, he felt that I would also have to go out of town for proper further treatment. He was partial to UCLA. We hit it off and he agreed to be my neurologist here. This was promising, he was even ok with me wanting to reduce my medications. I am going to start slowly by reducing my Amitriptylin by 1/2 a pill each day. As least it's something. Together we suggested that I get an updated MRI of my head and neck. Since I am starting to get pain in my arm.
On my trip back across town to get M from school, I would pick up my records for Dr. B & Dr. T. They were very nice as always at Dr. B's office- quick in and out. Then since it was 2pm I headed towards Dr. T's office to finally see if they will give me my records. Or course they didn't have them ready. Then they gave me 3 pages, I asked for more, they gave me 2 more, then that kept going. I asked to speak with Dr. T., I had already been then for 40 minutes. She came to the window, I didn't know what to say, because I wasn't expecting it. I told her exactly how I felt. She kept going back to who said what. I just told her how heartbroken I was. I would have respected her if she told me herself how was at that end of the road in he knowledge. She said she didn't want to be responsible for changing any medication because she would have to follow up. Nice! She also told me that her nurse Y. was left go. I guess even though this went hard I got to tell her what I thought. I left in tears but I left without being ugly and getting across what I wanted to say.
The next couple of days I was in so much pain. I took the pain medication as told, I actually think that made things worse. So I stopped. Something started to happen with my left arm, fingers and my left leg. The past 2 days I haven't been able to move my index finger. I have had it wrapped because moving it has hurt my entire arm and goes to my face. This is good that I am having my MRI on Tuesday. The pain in my face has been mild and it throws me off, why would you have pain in the arm and leg? I have been able to do things without my finger but cannot lift and turn to use my arm. I'm not happy and the pain gets to me. The pain radiates through my whole house.
Stress increases the pain, and when my now 17 years old's father told me that they didn't know what else to get her for her birthday except a tattoo. Really? An iPod, new shoes, clothes, hair, nails...I could go on, but to use the excuse that he couldn't find anything else? I don't blame her because of course a teenager would want something like that, but parents are here to help make good decisions. And although I said "NO" it was done anyways. What do you say? I know when I was younger than that I didn't make the best decisions, but my parents had nothing to do and sure as hell didn't sign off on any of the things I did. This not only make me angry but sad...what road is she going to be lead down?
As I started my trek way across LV, I kept telling myself to keep an open mind. I got lost getting there and why wouldn't I, I didn't print out a map. But I got there on time. It was in a nice neighborhood, but the office was old and nothing special about it. That was funny because the doctors with the nice offices don't do anything & the docs with just the basics seem to know what they are talking about. It took the usual time...forever...and an older man came in. He listened and asked questions, he felt that I would also have to go out of town for proper further treatment. He was partial to UCLA. We hit it off and he agreed to be my neurologist here. This was promising, he was even ok with me wanting to reduce my medications. I am going to start slowly by reducing my Amitriptylin by 1/2 a pill each day. As least it's something. Together we suggested that I get an updated MRI of my head and neck. Since I am starting to get pain in my arm.
On my trip back across town to get M from school, I would pick up my records for Dr. B & Dr. T. They were very nice as always at Dr. B's office- quick in and out. Then since it was 2pm I headed towards Dr. T's office to finally see if they will give me my records. Or course they didn't have them ready. Then they gave me 3 pages, I asked for more, they gave me 2 more, then that kept going. I asked to speak with Dr. T., I had already been then for 40 minutes. She came to the window, I didn't know what to say, because I wasn't expecting it. I told her exactly how I felt. She kept going back to who said what. I just told her how heartbroken I was. I would have respected her if she told me herself how was at that end of the road in he knowledge. She said she didn't want to be responsible for changing any medication because she would have to follow up. Nice! She also told me that her nurse Y. was left go. I guess even though this went hard I got to tell her what I thought. I left in tears but I left without being ugly and getting across what I wanted to say.
The next couple of days I was in so much pain. I took the pain medication as told, I actually think that made things worse. So I stopped. Something started to happen with my left arm, fingers and my left leg. The past 2 days I haven't been able to move my index finger. I have had it wrapped because moving it has hurt my entire arm and goes to my face. This is good that I am having my MRI on Tuesday. The pain in my face has been mild and it throws me off, why would you have pain in the arm and leg? I have been able to do things without my finger but cannot lift and turn to use my arm. I'm not happy and the pain gets to me. The pain radiates through my whole house.
Stress increases the pain, and when my now 17 years old's father told me that they didn't know what else to get her for her birthday except a tattoo. Really? An iPod, new shoes, clothes, hair, nails...I could go on, but to use the excuse that he couldn't find anything else? I don't blame her because of course a teenager would want something like that, but parents are here to help make good decisions. And although I said "NO" it was done anyways. What do you say? I know when I was younger than that I didn't make the best decisions, but my parents had nothing to do and sure as hell didn't sign off on any of the things I did. This not only make me angry but sad...what road is she going to be lead down?
Tuesday, October 11, 2011
And To Lose More...
After talking to my Grandma she heard of a couple people passing away on Sept 16th. And my cousins wife lost her grandmother today. Too many too fast. I guess we all just lose others and never take that short time to tell others that they mean something to us. Especially the ones who took their lives.
Now back to my visit with the pain specialist. Dr. B. He was a very different type of person. I could feel that the staff knew that I was the one that left last week. When they call you back they take your vitals. My blood pressure was high 130/105 and my pulse rate was 115. None of which this was discussed. They leave the door open until he comes in. The lady in the room across from me only had 1 leg and a prosthetic. She asked me what happened to me and then she said she had nothing to complain about. I said "Not at all I have all of my limbs". He comes in and does this bow thing. Apologized for the last visit and then splirted out about 20 statistics. You can die...dah...dah...dah. Whatever! I wanted to have my mom on the phone while I was there, since she can't come with me. He said no because of HIPP laws. So again I lost and walked out with another RX.
I called my GP and them I know that my Blood Pressure was high, so I have to see them in the morning. Then I will have to rush off to see the new neurologist. I need to keep a good attitude, be open.
Now back to my visit with the pain specialist. Dr. B. He was a very different type of person. I could feel that the staff knew that I was the one that left last week. When they call you back they take your vitals. My blood pressure was high 130/105 and my pulse rate was 115. None of which this was discussed. They leave the door open until he comes in. The lady in the room across from me only had 1 leg and a prosthetic. She asked me what happened to me and then she said she had nothing to complain about. I said "Not at all I have all of my limbs". He comes in and does this bow thing. Apologized for the last visit and then splirted out about 20 statistics. You can die...dah...dah...dah. Whatever! I wanted to have my mom on the phone while I was there, since she can't come with me. He said no because of HIPP laws. So again I lost and walked out with another RX.
I called my GP and them I know that my Blood Pressure was high, so I have to see them in the morning. Then I will have to rush off to see the new neurologist. I need to keep a good attitude, be open.
At A Loss...
Call me superstitious, but after hearing about 2 deaths in the last couple of days I told J that it always comes in 3's. It started with the neighbor, there has been a ton of traffic over there the past week. I found out on Saturday that their Grandma died. Then on Sunday I talked to B and she said one of her dads' employee's tried to commit suicide and he wasn't going to make it. I found out this morning that a kid I went to school with, we hung out with the same crowd, committed suicide this morning. Wow! My thoughts are with all of their families.
Today I opened my eyes and was in excruciating pain. My pain is starting to travel not only in my face but to the left side of my body. My fingers and arms are getting weak along with the my arm. I couldn't even stand up without feeling pain in my left leg. I have the appointment with the Pain Specialist today. I just hope that they aren't running late.
Today I opened my eyes and was in excruciating pain. My pain is starting to travel not only in my face but to the left side of my body. My fingers and arms are getting weak along with the my arm. I couldn't even stand up without feeling pain in my left leg. I have the appointment with the Pain Specialist today. I just hope that they aren't running late.
Monday, October 10, 2011
First Things First
I woke up feeling confused. Seems like I feel that way often. I forget what house I wake up in, I like to blame it on moving so much. I go up and got in the shower that seems to help a little. Mild pain this morning, with my eye being really blurry. M got up and was downstairs before me today which was nice.
Getting together the packages is a big job. Once they are done it's going to be just another step in taking my health care and owning it. I have the introduction letter written, all of the folders with a label on the front "PLEASE REVIEW, My Name, Atypical Trigeminal. I had to add my own touch through. I found this template that had blood dripping on the edges. If nothing else it will stand out. First Things First.
Getting together the packages is a big job. Once they are done it's going to be just another step in taking my health care and owning it. I have the introduction letter written, all of the folders with a label on the front "PLEASE REVIEW, My Name, Atypical Trigeminal. I had to add my own touch through. I found this template that had blood dripping on the edges. If nothing else it will stand out. First Things First.
Sunday, October 9, 2011
The Day Was Half Over When I Got Up
I couldn't seem to get up, my muscles felt tight. I finally got up at 3:00pm and we went to the grocery store. On our way home we went to stop by and check out out the NBAA (an airplane conference). That was pretty cool. We went to one of J's old friends hangers and M and their little boy ran around and played by the planes parked in the hanger. I texted a picture of a display to L and the texted I got back said 'Do not contact me A". Huh, oh well. Maybe in 2011 people just got crappier. Who knows! But this time I wasn't upset. I was just trying to make small talk, J just laughed, I mean who did he think I got the number from, because I sure as hell didn't keep it. When we left, there were security guards with machine guns. They aren't kidding around.
I hope tomorrow turns out good and I feel good. Nothing much to report.
I hope tomorrow turns out good and I feel good. Nothing much to report.
Saturday, October 8, 2011
I Forgot About My Blog! Nice.
Keeping up with my health is a full-time job.
I'll go back to catch myself up. I had to get my book and it's been filled with a ton different things. I went to meet with a new Social Security Lawyer. Who knows what they really do until you are denied 2 times and go to court. But at least they didn't feel that I didn't have a chance. The next day I had an appointment with my nutritionist. I missed it. I don't even know what I was doing or why. I felt bad, that's so unlike me to miss an appointment. Especially when it's written down. I had a bunch of bad days. It seems like ever since I went to Dr. M. the pain has been practically non-stop. I'm not blaming I'm mearly pointing something out.
So after missing the appointment last week, I rescheduled. And missed it again on Monday. I don't understand, I just don't. What is going on with me? I woke up Tuesday and made the decision that I was going to go and get my LV Drivers Licence. While I was there I decided to get my plates too. I got there and was preparing to spend awhile. I wasn't feeling too bad so it was a good time to get this done. I walked through the maze to get my number and as soon as I walked over to sit down they called my number. That went too quick. Got my plates and then when it came to my licence that didn't go so well. It seems since I lived in LV before, but under a different name I had to go home and get a few documents. My birth certificate, my divorce decree, my marriage licence to J and my new ss card. Thank goodness we file everything nicely. After I got home I decided that I would just go and get J's car so that I could get his plates too. But it seem to not go so quickly. It started pouring rain and the DMV was packed. Ugghh! After 2 hours I was done, and very happy. I was starting to feel bad. Well after 4 months that's done. Check!
On Wednesday I had an appointment with Dr. B.. I still wonder what he exactly does besides allow me to sit on his comfy couch and act like he cares. But he's not mean so I have to do what I have to do. Thursday came and I had 2 appointments. The first one was with Dr. L. (Endocrinologist). We talked and he thinks that I should stay at the dose of thyroid medication. I can't really remember what he said about the thyroid ultrasound he did, but whatever it was I don't have to go back until 6 months. While we were talking and I told him about all of the neurologists I have been through. He said he understood and he's been told that he was a jerk too. But he feels like he trys to show compassion. He said that this isn't a problem (my problem) that is going to be solved in Henderson, NV. This is a Mayo issue. He said that I should try the Mayo Clinic in Rochester or a clinic in Arizona called the Barrow. Hummm I'll have to check that out. The next appointment I was tried, I showed up early and had all of the papers filled out before. I was called back a few minutes before my appointment. This was with Dr. B (Pain Management), 1st impressions weren't the best. After 45 minutes of sitting in the room I had to go, I was going to be late getting M from school. I was panicking. They didn't seem to care. I was in so much pain, but M comes 1st.
I found the Barrow Neurological Institute online. They were ranked one of the Top 10 by the Business and News Magazine. I called and got ahold of one of the doctors offices, he is very knowledgeable about TN. J and I are going to be getting all of my records together in a nice portofilios' to send out to numerous doctors for review. Then we will decide after hearing back if they can help or not. Next week I have the rescheduled appointment with the pain specialist and another neurologist "Top doc on NV". I hope to find a plan to rearrange my meds and get a referral for an updated MRI to send out with my packages.
Friday came around and I had another appointment with my nutritionist. I apologized to her, told her that I didn't even have an excuse to missing the prior appointments. She said that it was ok, I have alot on my plate and if I need to reschedule the next one it was fine.
Our little kitty, Sophie is doing great. She is about 1 pound now and able to eat on her own more. But she's going to be a spoiled cat with all of the attention she gets. B's 17th birthday is next Thursday and it's seems as if time goes along whether you are sick or not.
I'll go back to catch myself up. I had to get my book and it's been filled with a ton different things. I went to meet with a new Social Security Lawyer. Who knows what they really do until you are denied 2 times and go to court. But at least they didn't feel that I didn't have a chance. The next day I had an appointment with my nutritionist. I missed it. I don't even know what I was doing or why. I felt bad, that's so unlike me to miss an appointment. Especially when it's written down. I had a bunch of bad days. It seems like ever since I went to Dr. M. the pain has been practically non-stop. I'm not blaming I'm mearly pointing something out.
So after missing the appointment last week, I rescheduled. And missed it again on Monday. I don't understand, I just don't. What is going on with me? I woke up Tuesday and made the decision that I was going to go and get my LV Drivers Licence. While I was there I decided to get my plates too. I got there and was preparing to spend awhile. I wasn't feeling too bad so it was a good time to get this done. I walked through the maze to get my number and as soon as I walked over to sit down they called my number. That went too quick. Got my plates and then when it came to my licence that didn't go so well. It seems since I lived in LV before, but under a different name I had to go home and get a few documents. My birth certificate, my divorce decree, my marriage licence to J and my new ss card. Thank goodness we file everything nicely. After I got home I decided that I would just go and get J's car so that I could get his plates too. But it seem to not go so quickly. It started pouring rain and the DMV was packed. Ugghh! After 2 hours I was done, and very happy. I was starting to feel bad. Well after 4 months that's done. Check!
On Wednesday I had an appointment with Dr. B.. I still wonder what he exactly does besides allow me to sit on his comfy couch and act like he cares. But he's not mean so I have to do what I have to do. Thursday came and I had 2 appointments. The first one was with Dr. L. (Endocrinologist). We talked and he thinks that I should stay at the dose of thyroid medication. I can't really remember what he said about the thyroid ultrasound he did, but whatever it was I don't have to go back until 6 months. While we were talking and I told him about all of the neurologists I have been through. He said he understood and he's been told that he was a jerk too. But he feels like he trys to show compassion. He said that this isn't a problem (my problem) that is going to be solved in Henderson, NV. This is a Mayo issue. He said that I should try the Mayo Clinic in Rochester or a clinic in Arizona called the Barrow. Hummm I'll have to check that out. The next appointment I was tried, I showed up early and had all of the papers filled out before. I was called back a few minutes before my appointment. This was with Dr. B (Pain Management), 1st impressions weren't the best. After 45 minutes of sitting in the room I had to go, I was going to be late getting M from school. I was panicking. They didn't seem to care. I was in so much pain, but M comes 1st.
I found the Barrow Neurological Institute online. They were ranked one of the Top 10 by the Business and News Magazine. I called and got ahold of one of the doctors offices, he is very knowledgeable about TN. J and I are going to be getting all of my records together in a nice portofilios' to send out to numerous doctors for review. Then we will decide after hearing back if they can help or not. Next week I have the rescheduled appointment with the pain specialist and another neurologist "Top doc on NV". I hope to find a plan to rearrange my meds and get a referral for an updated MRI to send out with my packages.
Friday came around and I had another appointment with my nutritionist. I apologized to her, told her that I didn't even have an excuse to missing the prior appointments. She said that it was ok, I have alot on my plate and if I need to reschedule the next one it was fine.
Our little kitty, Sophie is doing great. She is about 1 pound now and able to eat on her own more. But she's going to be a spoiled cat with all of the attention she gets. B's 17th birthday is next Thursday and it's seems as if time goes along whether you are sick or not.
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