Whew! Pain and then when you aren't expecting it more pain! It isn't convenient, it isn't planned, it doesn't care where you are or who you are with, it just hits. I may not have a limp or be in a wheelchair, but I believe I am disabled. It it hard to deal with, emotionally, mentally and physically. I do what I can!
Years ago I wouldn't leave the house without make-up or my hair done. Now I don't care, I'm just happy if I can get out the door. And who really cares if I show up it pick M up without make-up? No one.
Monday I got a package in the mail from my Case Manager with my insurance. It had in there a list of resource's I could call for different things. So yesterday I started down the list calling the ones I thought I could get answers from. I stopped at the FDA, after I left a message. I don't really know why, but why not? I also got a call back from the office of the President from the Medical Association in Nevada. They would like me to write a letter telling why I think I have received bad medical care (or however you say that). I asked the lady if I could take excerpts from my blog because I don't remember exact feelings or days. She said that was fine, the more the better. So I'll be working on that.
Over the weekend I wrote letters to all of my doctors, present and soon to be past requesting my records. I also fired my social security attorney. I felt that she wasn't doing anything to help me. I sent all of these certified. I figured it was a way to get their attention. I also talked to a supervisor at SSA. She said that they can't do anything until there get the records from some of my doctors. They requested records from Dr. T, 2 times and now it is my responsibility to get them. I also told Dr. M that I will not be coming back. How else do I take control back. I made an appointment with a doctor that was listed as one of Nevada's top Neurologist. Tomorrow I have an appointment to see a new attorney. I wish J or my mom could be there.
ATN
Wear Teal
Wednesday, September 28, 2011
Sunday, September 25, 2011
N.U.C.C.A. (Nobody Understands Confusing Cognitive Assertions)
I was still feeling pretty good the weekend following my 1st visit with Dr. M. Except for some weird side effects increased anxiety, irritation, and this crazy painful left arm problem. Little was I to know what was lying ahead for me.
M started to get a sore throat, so we didn't overdo anything on Sunday. That night taking a look at her throat her tonsils were humongous, along with a fever. Poor baby. So that made the plan that she wasn't going to school on Monday. I got her into pediatrician's at 9:30am. She has had tonsillitis for the 3rd-4th time this year. :(
I had an appointment with B from Active Health at 11:30am. We rushed to get back home and it figures, he didn't even call. I don't even know why I don't have his phone number. On Tuesday I went to see Dr. M again. I told him about the pain, anxiety and irritation. He smiled the entire time while I went over everything. He said this is how you were supposed to feel. Thanks for the 'heads up', but I guess he didn't want to put any thoughts into my head. Things went okay with the 3rd adjustment, and the rest of the day.
On Monday we were "put together" with this little baby kitty, the last thing we thought we wanted. Wednesday morning I took this little un-named 11 ounce kitty to the vet for a free vet check. This is something that I would have never done in the past months. I mean just get up and go, or do anything for that fact. She was in good health the doctor told me she was about 2-3 weeks old, and needed to be bottle-fed until she gets her teeth. She grew on all of us so fast and was our new kitty. I went home after and I was taking things slow. About 3 hours later WHAM!!! The pain jolting through my ear into my face and head. I laid down and cried. I was so hopeful that this UCC treatment was going to work. I mean others practically made me feel bad and guilty that I wasn't trying everything I could. I also had a little fever and pain on my right-side like a side ache. Thursday started out even worse. My face was numb, and you might think that having numbness is better than pain, but this isn't a good numbness it's so hard to explain. I cried and cried it hurt so bad. Mid-morning I called my mom and told her what was going on, she told me to call Dr. M since he was treating me. I called and left him a voicemail. He called back soon thereafter. I went over all of my symptoms and he ask if I could come in later that afternoon. I called J and asked if he could take me since it was was across town. Oh no!! I just remembered that I had my dental appointment for my broken tooth. I went and they were very nice and the Dentist asked about TN, since she has never met anyone with it. She was curious because she learned about it in dental school. She did no more than necessary, thankfully it was on the right side of my face. It seems that I just nicked the enamel by a filling that needed smoothing.
I went to pick up M early after school in order to meet J at home. We were off to Dr. M's office. We we got there he did 3 or 4 adjustments and nothing worked. He couldn't understand what had knocked me back out of alignment. He mentions to J that I had alot of anxiety, and that might have done it. Whatever, just the other day he had told me that I was supposed to feel that way. That's what the adjustments were doing "un-kinking my hose". From there he said he'd meet us in the comfy chair room. He asked me how I was feeling, still no better. He brought in a machine and put it behind my head and then on my ankles. From there he took the ankle pack and put it on my forehead. All of this was in order to loosen the nerves, or something like that. J had been asking questions the whole time, which was exactly what I needed. At last Dr. M said I am going to set the timer for 12 minutes and then just call me tomorrow. What?!? He was leaving? J jumped in with a question and something set me off- I was half yelling and crying - "you don't understand, you don't know what kind of pain this is". Dr. M rolled is machine out and was gone. Without a single word, he just left.
The nausea and pain continues. And now I need to start thinking about what to do next. But it's hard to think about that when you feel so bad. I still needed to get a some lab tests done. So Friday night I decided to start. The 1st test was to be done after 11pm. I had to take this cotton like thing and chew on it until I had to swallow. With dry mouth you can go quite a while without swallowing. Then you put it in this tube. The next step was to fast and have your blood taken by 8 in the morning. I went to the lab on Saturday. Seven vials of blood later I was out of energy. So back to my sanctuary...my bed.
Las Vegas and Denver to see what knowledge they have with TN and let me know hopefully on Monday too!
So I feel that although UCC may be right for some it isn't a path I'm willing to go down again. I put so much faith in something that I felt was really going to show results and nothing. That's hard to that put behind you. But I'm on bed rest again, per TN, and it sucks!
M started to get a sore throat, so we didn't overdo anything on Sunday. That night taking a look at her throat her tonsils were humongous, along with a fever. Poor baby. So that made the plan that she wasn't going to school on Monday. I got her into pediatrician's at 9:30am. She has had tonsillitis for the 3rd-4th time this year. :(
I had an appointment with B from Active Health at 11:30am. We rushed to get back home and it figures, he didn't even call. I don't even know why I don't have his phone number. On Tuesday I went to see Dr. M again. I told him about the pain, anxiety and irritation. He smiled the entire time while I went over everything. He said this is how you were supposed to feel. Thanks for the 'heads up', but I guess he didn't want to put any thoughts into my head. Things went okay with the 3rd adjustment, and the rest of the day.
On Monday we were "put together" with this little baby kitty, the last thing we thought we wanted. Wednesday morning I took this little un-named 11 ounce kitty to the vet for a free vet check. This is something that I would have never done in the past months. I mean just get up and go, or do anything for that fact. She was in good health the doctor told me she was about 2-3 weeks old, and needed to be bottle-fed until she gets her teeth. She grew on all of us so fast and was our new kitty. I went home after and I was taking things slow. About 3 hours later WHAM!!! The pain jolting through my ear into my face and head. I laid down and cried. I was so hopeful that this UCC treatment was going to work. I mean others practically made me feel bad and guilty that I wasn't trying everything I could. I also had a little fever and pain on my right-side like a side ache. Thursday started out even worse. My face was numb, and you might think that having numbness is better than pain, but this isn't a good numbness it's so hard to explain. I cried and cried it hurt so bad. Mid-morning I called my mom and told her what was going on, she told me to call Dr. M since he was treating me. I called and left him a voicemail. He called back soon thereafter. I went over all of my symptoms and he ask if I could come in later that afternoon. I called J and asked if he could take me since it was was across town. Oh no!! I just remembered that I had my dental appointment for my broken tooth. I went and they were very nice and the Dentist asked about TN, since she has never met anyone with it. She was curious because she learned about it in dental school. She did no more than necessary, thankfully it was on the right side of my face. It seems that I just nicked the enamel by a filling that needed smoothing.
I went to pick up M early after school in order to meet J at home. We were off to Dr. M's office. We we got there he did 3 or 4 adjustments and nothing worked. He couldn't understand what had knocked me back out of alignment. He mentions to J that I had alot of anxiety, and that might have done it. Whatever, just the other day he had told me that I was supposed to feel that way. That's what the adjustments were doing "un-kinking my hose". From there he said he'd meet us in the comfy chair room. He asked me how I was feeling, still no better. He brought in a machine and put it behind my head and then on my ankles. From there he took the ankle pack and put it on my forehead. All of this was in order to loosen the nerves, or something like that. J had been asking questions the whole time, which was exactly what I needed. At last Dr. M said I am going to set the timer for 12 minutes and then just call me tomorrow. What?!? He was leaving? J jumped in with a question and something set me off- I was half yelling and crying - "you don't understand, you don't know what kind of pain this is". Dr. M rolled is machine out and was gone. Without a single word, he just left.
The nausea and pain continues. And now I need to start thinking about what to do next. But it's hard to think about that when you feel so bad. I still needed to get a some lab tests done. So Friday night I decided to start. The 1st test was to be done after 11pm. I had to take this cotton like thing and chew on it until I had to swallow. With dry mouth you can go quite a while without swallowing. Then you put it in this tube. The next step was to fast and have your blood taken by 8 in the morning. I went to the lab on Saturday. Seven vials of blood later I was out of energy. So back to my sanctuary...my bed.
Las Vegas and Denver to see what knowledge they have with TN and let me know hopefully on Monday too!
So I feel that although UCC may be right for some it isn't a path I'm willing to go down again. I put so much faith in something that I felt was really going to show results and nothing. That's hard to that put behind you. But I'm on bed rest again, per TN, and it sucks!
Saturday, September 17, 2011
What Shall I Choose?
With the scar from my afternoon in the emergency room left on my hand from the I.V. I think how crazy it is that I was just there. I feel empty inside, no emotion about it. Going to Dr. M.'s was interesting on Friday. He is so friendly, and he knows I 'm unsure of the results. He told me you don't have to believe you just have to accept it. So I let him do him thing. His "thing" includes standing on two different scales, each foot on one to let him know which side is heavier. Then he busts out his protractor to measure the side of my neck. I can't really tell because I'm laying one my side. Then he takes his hand and pushes down on my earlobe and neck. Not too hard but just enough pressure to do whatever he does. This takes about 5 minutes. Then you go and rest on a big comfy recliner for a while. Then he took me back and asked how I felt. I said "If I'm supposed to feel like you smacked me then I guess I feel that ". So he has me lay down and he does the whole thing again. Then back up on the scales. After, he lets me go to the comfy room again. My reaction to this whole thing is questionable, but he can tell. He is from South Africa and this is where he first had it done to him after a sports injure. After that I'm released and scheduled for Tuesday another appointment. I mentioned to him that I have an appointment on Tuesday with a pain management doctor. He said to postpone it, so I did. But that makes me doubt a little, does he think this won't work himself? At least this time leaving his office I wasn't crying. I was sore but not in pain. I do have to admit that my energy level was higher than it had been in a long time.
I woke up this morning and I was sore. My collarbone was swollen again and I was really sore. Of course the stabbing sensation in my ear was present. I was excited to rest until J reminded me that today I had something special to do. This was the day that I had my 1st Las Vegas area TN support group. It was pretty far and 1/2 was there I was hit with anxiety, I was hot and shaky. All I wanted to do was get my Salted Carmel Hot Chocolate from Starbucks that I had planned. MMmmmm! This was a kind of crappy part of town, and I didn't know where anything was. Thank goodness for my Places App on my phone. *Note: J told me I could take drinks into the library. I haven't been in a million years. So I get to the library and right along side of the NO GUNS sign, it said it said NO DRINKS! Well you can see where I'm going.....I actually snuck my hot coco in.
I could share with you the entire meeting but I'll sum it up. There were about 7 people there and they gave information about things that are happening in the next 10 years with this illness. We went around the table introducing ourselves and I was 1st. I told everyone what I had been through and the medications I'm on. No one seemed to believe me since they were only given 1 of the medications for TN. Everyone had different stories but their paths were longer and less dramatic. But they seemed to accept this way of living, they were either retired or working/FMLA. No one had any success with neurologists in Southern Nevada. Two persons have had the Gamma Knife Procedure but are still on medications at a lower dose. That is very sad. So we will meet again in December.
So I'll soon be to my decision about where to go from here. UCLA called on Friday, and I told J that it will be the only time he will ever see UCLA calling for me. Ha Ha! But what do I do if Dr. M. doesn't work out?
I woke up this morning and I was sore. My collarbone was swollen again and I was really sore. Of course the stabbing sensation in my ear was present. I was excited to rest until J reminded me that today I had something special to do. This was the day that I had my 1st Las Vegas area TN support group. It was pretty far and 1/2 was there I was hit with anxiety, I was hot and shaky. All I wanted to do was get my Salted Carmel Hot Chocolate from Starbucks that I had planned. MMmmmm! This was a kind of crappy part of town, and I didn't know where anything was. Thank goodness for my Places App on my phone. *Note: J told me I could take drinks into the library. I haven't been in a million years. So I get to the library and right along side of the NO GUNS sign, it said it said NO DRINKS! Well you can see where I'm going.....I actually snuck my hot coco in.
I could share with you the entire meeting but I'll sum it up. There were about 7 people there and they gave information about things that are happening in the next 10 years with this illness. We went around the table introducing ourselves and I was 1st. I told everyone what I had been through and the medications I'm on. No one seemed to believe me since they were only given 1 of the medications for TN. Everyone had different stories but their paths were longer and less dramatic. But they seemed to accept this way of living, they were either retired or working/FMLA. No one had any success with neurologists in Southern Nevada. Two persons have had the Gamma Knife Procedure but are still on medications at a lower dose. That is very sad. So we will meet again in December.
So I'll soon be to my decision about where to go from here. UCLA called on Friday, and I told J that it will be the only time he will ever see UCLA calling for me. Ha Ha! But what do I do if Dr. M. doesn't work out?
Thursday, September 15, 2011
I Had High Hopes
My god, I've been pulling my hair out lately, I'm suprised that I have any left. After the whole E.R. mess I was so looking forward to this morning. I had another appointment with a neurologist. Dr. B. I go into these appointments everything laid out there. I don't want anyone to be able to later tell me that I should have told them something. Also I want everyone to know that although some of my medications are for nerve pain the only pain medication I have is Vicoden. I have had the same bottle of 40 pills since May. So I'm not doctor-hopping just to get more rx's.
J has gone with me to meet the past 2 doctors so that I wasn't alone. This morning the doctor came in and the 1st thing he said is 'I have reservations because you have been to see 2 other doctor's', right then did J say he could see a shift in his body language. Is wanting to see who can do the best by me a crime? I mean I'm sure they all sit in a few different cars before buying, it's no different. He did the usual 'follow my finger' tests and then said "I can't read you, what are you wanting?". I told him that I want to get off all of the medications. He kept talking about all how Trigeminal Neuralgia is crazy and it does what it wants. Then I said if the medications aren't working then why am I taking them? He said that if you stop them you could be in 10 times more pain then you are already in. He kept saying "I can't read you...". Here is this guy telling me that he basically doesn't what to help me. 3 adults and 1 child in a small exam room and none of us had a clue. He asked if I had any issues with the Tegretol and since I didn't he would up that and give me a referral to a neurosurgeon. First he had to check something and would be right back. A couple of minutes later the assistant comes back in and gives me the rx for the increased Tegretol (I still haven't even looked at it), and said that he'll refer me to Dr 1 and Dr. 2. J and I were lost. Why two seperate doctors? We asked her, fully knowing that she was just the messenger. That doctor didn't even have the balls to come back in. We were escorted to the check-out desk. Still asking why 2 doctors. Of course they didn't know. I asked if I needed to make another appointment and she said no. I don't understand, but I wasn't alone J was like "did we miss something?". I had tears in my eyes before we even made it to the door.
Here is what happens to you when you have something that nobody knows anything about. This is the way you are treated. Since leaving the E.R. I have felt sick to my stomach, and the only thing I got there was IV Fluids to hydrate me NO PAIN PILLS!!! Yesterday I called Dr. M, the guy who does the NUCCA treatment. I mean at least he won't give me anymore pills, I HOPE!! We talked a bit and he said that he would like a chance to help me by at least getting 2-3 treatments under the belt. I'm throwing my hands in the air.
As I dropped M off at school I noticed that I had a little chip in a tooth. Freakin' Great!!! And all of this before 9am. I called the dentist and not until next Thursday. It must be because of grinding my teeth at night. Is this what it feels like to be at the end of your rope? Can anyone tell me.
J has gone with me to meet the past 2 doctors so that I wasn't alone. This morning the doctor came in and the 1st thing he said is 'I have reservations because you have been to see 2 other doctor's', right then did J say he could see a shift in his body language. Is wanting to see who can do the best by me a crime? I mean I'm sure they all sit in a few different cars before buying, it's no different. He did the usual 'follow my finger' tests and then said "I can't read you, what are you wanting?". I told him that I want to get off all of the medications. He kept talking about all how Trigeminal Neuralgia is crazy and it does what it wants. Then I said if the medications aren't working then why am I taking them? He said that if you stop them you could be in 10 times more pain then you are already in. He kept saying "I can't read you...". Here is this guy telling me that he basically doesn't what to help me. 3 adults and 1 child in a small exam room and none of us had a clue. He asked if I had any issues with the Tegretol and since I didn't he would up that and give me a referral to a neurosurgeon. First he had to check something and would be right back. A couple of minutes later the assistant comes back in and gives me the rx for the increased Tegretol (I still haven't even looked at it), and said that he'll refer me to Dr 1 and Dr. 2. J and I were lost. Why two seperate doctors? We asked her, fully knowing that she was just the messenger. That doctor didn't even have the balls to come back in. We were escorted to the check-out desk. Still asking why 2 doctors. Of course they didn't know. I asked if I needed to make another appointment and she said no. I don't understand, but I wasn't alone J was like "did we miss something?". I had tears in my eyes before we even made it to the door.
Here is what happens to you when you have something that nobody knows anything about. This is the way you are treated. Since leaving the E.R. I have felt sick to my stomach, and the only thing I got there was IV Fluids to hydrate me NO PAIN PILLS!!! Yesterday I called Dr. M, the guy who does the NUCCA treatment. I mean at least he won't give me anymore pills, I HOPE!! We talked a bit and he said that he would like a chance to help me by at least getting 2-3 treatments under the belt. I'm throwing my hands in the air.
As I dropped M off at school I noticed that I had a little chip in a tooth. Freakin' Great!!! And all of this before 9am. I called the dentist and not until next Thursday. It must be because of grinding my teeth at night. Is this what it feels like to be at the end of your rope? Can anyone tell me.
Tuesday, September 13, 2011
Another Crappy Day!
What happened to today? I guess I ask that question a lot. I went to bed last night and was having sharpe nerve pain from my left foot to my left fingers. Poor J laid awake with me worrying if I was ok. I got up and got in the shower, so that I was awake enough to get M to school today. After that I came back laid on the bed with a throw blanket. That is where I stayed until around noon. I felt terrible, not just the usual. I had zero energy and my left side was really weak. J came home and we went to the ER.
We got right in to the ER Dept. The minute I mention ATN, all treatment of kind of changed. They took blood tests to make sure that my kidneys and liver are functioning good and monitored my heart. Then they gave me some IV fluid. They asked me what kind of pain medication I wanted. I told him I don't want anymore pills. He said I might have to go to Detox if I wanted to come off of everything. WHAT?!? How scary. Once the tests came back they let me go. I came home and came to bed.
I got a disturbing email from a lady on the TN Support Website emails me often. I think she secretly works or the UCC Treatment of America. She emailed me tonight telling me that I am more concerned about going and getting more prescriptions. J said to not play into what she says, I agree. And on that note I am going to sleep. Thank you for all that keep reading and support me.
We got right in to the ER Dept. The minute I mention ATN, all treatment of kind of changed. They took blood tests to make sure that my kidneys and liver are functioning good and monitored my heart. Then they gave me some IV fluid. They asked me what kind of pain medication I wanted. I told him I don't want anymore pills. He said I might have to go to Detox if I wanted to come off of everything. WHAT?!? How scary. Once the tests came back they let me go. I came home and came to bed.
I got a disturbing email from a lady on the TN Support Website emails me often. I think she secretly works or the UCC Treatment of America. She emailed me tonight telling me that I am more concerned about going and getting more prescriptions. J said to not play into what she says, I agree. And on that note I am going to sleep. Thank you for all that keep reading and support me.
Saturday, September 10, 2011
Short Stuff
I laid in bed all day, either feeling nauseous, itching, stomach pains or in dire pain or wondered if I should go to the E.R. This new medicine (now not taking as of tonight) is causing all of the symptoms. I laid and was quiet all day. I also tried to call the new neurologist, Dr Y and guess what? They don't have ANYONE on call ever. So she suggested I go to the E.R.. I'm fighting that trip. I don't have the energy to even get up. So this day sucked.
Friday, September 9, 2011
All In A Day, Okay Maybe Two
The day before yesterday I was not feeling good. I don't know, something wasn't right. I decided to go and fill the Rx's the new Dr. Y gave me. Lidocaine Cream and Divalproex. I tried the Lidocaine right when I got home. I did just as the pharmacist instructed, rub it on the areas that are in pain to numb it. I opened it and it was like Vaseline. I took some and rubbed it all over my face, and then my hair kept sticking to it, it just turned into a huge mess. Now I have to tell you that I requested this stuff. I read it on the TN Support website that someone tried it and it work for them. It did not work for me, not unless I wanted to turn into a human fly-trap. The next rx the Divalproex when I picked it up was told it was just like the Tegratol and the Nirotin. That makes sense.
Anyways, I started calling hospitals on the west coast that have Trigeminal Neuralgia Departments. The Mayo Clinic had no openings, but I got registered. Then I called UCLA and also got registered with them. I need to send them all of my records and then they will call me if they can do anything. I called US San Diego, registered with them and need to have the neurologist send a referral. Finally I called the Skull Base Institute. They were very nice and if I can get all of my information to them they have consults next week! They even do phone consults or Skype. I find this strange in case he would want to look at my eye that skips, or hear my every increasing heartbeat or the most important feel where the pain is. That all sounded strange to me along with the $950 price tag. I called all of the neurologists (Dr.L-G in DE and Dr. T & Dr Y). This sounds easier that it really is.
Basically I've felt like crap lately. I'm not sure if it's the other new pill or not. I'm sooo tired and my face is painful. If I move a certain way and too much weight is on it, it screams in pain. I don't want to talk, move, smile, chew, brush my teeth or be nice. I just don't! I had a horrible dream last night, which is common with some of these drugs. but I don't like it.
Anyways, I started calling hospitals on the west coast that have Trigeminal Neuralgia Departments. The Mayo Clinic had no openings, but I got registered. Then I called UCLA and also got registered with them. I need to send them all of my records and then they will call me if they can do anything. I called US San Diego, registered with them and need to have the neurologist send a referral. Finally I called the Skull Base Institute. They were very nice and if I can get all of my information to them they have consults next week! They even do phone consults or Skype. I find this strange in case he would want to look at my eye that skips, or hear my every increasing heartbeat or the most important feel where the pain is. That all sounded strange to me along with the $950 price tag. I called all of the neurologists (Dr.L-G in DE and Dr. T & Dr Y). This sounds easier that it really is.
Basically I've felt like crap lately. I'm not sure if it's the other new pill or not. I'm sooo tired and my face is painful. If I move a certain way and too much weight is on it, it screams in pain. I don't want to talk, move, smile, chew, brush my teeth or be nice. I just don't! I had a horrible dream last night, which is common with some of these drugs. but I don't like it.
Tuesday, September 6, 2011
It Feels Like the Longest Train Ride Ever!
I relied on a person in a professional setting that said she would see me though this fight. Last week after 6 straight days of pain, I started to see the light again with the normal throbbing. As I was sitting on the floor by my bed the phone rang, it was Dr.T’s office. I thought they were calling to confirm my appointment for the following day. Exactly the opposite, they called to tell me that I should look for a new neurologist. OH MY GOD!!!!!! REALLY?!? I was floored, the phone rang and it was my mother-in-law. She listened to me sobbing into the phone. After I finished with that call, I called J and then my mom. I was hurt then angry. This was unbelievable to me; I have never been fired from a doctor’s office.
As I shared my story, I was told I should write a letter to the doctor. I mean what did this girl tell her that I said? Aren’t you supposed to call the doctor if you are in pain? What good what it have done me it write a letter? The entire office consisted of 4 people, the doctor and then 3 workers. Whose side would she really have taken? It wasn’t worth my time; I needed to get on finding another doctor. I did call my insurance and let them know so that it would reflect on her rating. My tears and anger provoke questions…but questions aren’t going to get me anywhere right now.
I called around and asked doctors if they knew anything about my “Condition”. I found a neurologist that had a cancellation for last Friday. J went with me and as we waited for an HOUR after my appointment time, we were called back. I was not very patient as Dr. V asked the same questions over and over & then yawning. How do these doctors get degrees? J said after going to all of the doctor appointments with me he could do it, “Follow my finger, lift your arms and then don’t let me push them down…”. Okay, he’s right. This new doctor wants to do new MRI’s, blood tests and then refer me to either UCLA or The Mayo Clinic. He said that my condition was to complex and that I have already taken all of the medication that they usually go through. I have been told that the UCC treatment would be helpful but I just don’t believe. So here I am…all of my chips are on the table. I called The Mayo Clinic and was told that they do not have any appointments. I got registered with them so that if I am able to get in, it would be easier. This all feels so surreal. I have all of this medication I’m taking and how do I step down. So for all of you that wondering here’s the list:
Name | Type | Dosage | Time |
Alprazolam 1mg | Tabs | 1mg | As needed |
Amitriptyline 75mg | Tabs | 75mg | 1 tab at bedtime |
Buspirone HCL 30 mg | Tabs | 60mg | 2 tabs every morning |
Duac CS Kit | Apply at night to face | ||
Flax Seed Oil 1000mg | Softgels | 2000mg | 2 gels twice daily |
Gabapentin 300mg | Caps | 1200mg | 2 caps twice daily |
Hydrocodone 500mg | Tabs | 500mg | As needed |
Levothyroxine 0.112mg | Tabs | 112mcg | 1 tab 30 min b4 breakfast |
Promethazine 25mg | Tabs | 25mg | As needed |
Red Yeast Rice 600mg | Caps | 1200mg | 1 cap twice daily |
Sertraline HCL 100mg | Tabs | 200mg | 2 tabs every morning |
Tegretol-XR 400mg | Tabs | 800mg | 1 tab twice daily |
Temazepam 30mg | Caps | 60mg | 2 caps at bedtime |
Vitamin D 50,000IU | Caps | 50,000IU | 1 cap every week |
Subscribe to:
Posts (Atom)