This week felt like a whirlwind. At the end of the week I made good on my promises to help with the PTA Teachers Appreciation Week Activities. I felt exhausted but at least something good came out of the time spent there. All of the teachers know M as the "little helper". That makes me happy that she can stand out from the crowd because of something that we did together. Wednesday I couldn't muster up the energy to go to the school. And with only M and I, we made 80 brownie bites to take in on Thursday.
I can tell that the pain has not yet peaked. I tried to tell myself that this time would be different, but I don't really know anything about this. On Wednesday I called the Neurologist office and left another message for Mr. Medical Receptionist. Here it is Friday and I had not heard back from them, so I called the Practice Administrator again and she called me back shortly there after. I guess Dr. L-G is going to be leaving but wants to see me before we make any changes to medication again. She scheduled me with the Nurse Practitioner Y.Y. on Monday and promised that Dr. L-G would come in to talk to me then. I guess she just didn't have any openings in her schedule.
On Thursday, I also went to meet with D.N. and we talked about how my memory or lack there of, is affecting my life. With everything that J has going on, where I am & what I'm doing is always at the front of his mind. I guess it's because he wants to know that I'm safe. I used to feel as if I knew what everyone was thinking and now I wonder what I'm thinking.
I woke up early today to help with the last of the festivities, and as I came out of the shower I could feel everything from my scalp to my my lips were numb. I have progressively noticed as if my left eye has been getting more cloudy over the past couple of days. As I'm told that is from the pain. I slept horrible last night and mid-morning realized that I forgot to take my sleeping medication, so there was that answer. How do I prevent this disease from defining me?
Tomorrow is M's 6th birthday and it's her day!! We are having a party for her, and as B's birthdays were always #1 so shall M's. So I may have forgotten this or that but as long as she has a great time, it will be worth it.
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