With the pain still hanging around like it was invited, I started my day. Not sure if I wanted to try and attempt to do something. I poked around and then decided to run to the store. It was hot out but not the dyer heat we had last week. Forth day on the asci juice, and it seems if I have a little more energy.
I had my appointment with Dr. T (neuro) later in the day. So I got home and waited for J to get off of work. We arrived 15 minutes early, which only turned out bad because she was running 30 minutes late. By the time she got into the room with us M had fallen asleep on the chair. I'm glad that J was with me to ask some of the questions I needed to, but forgot to write down. Plus it's easier to have him hear it rather than try and remember everything. She is so very nice, I'm glad that I found her. First on the list was the call from last weekend. She rechecked me and said that in fact I DO NOT have Occipital Neuralgia. Great I went through all of that pain from the physical therapy and the steroids for nothing. I should open a booth at the mall giving out medical advice, it would be as good as some of the medical advice I've been given.
We went over the other options: pain management, gamma knife vs. micro vascular decompression surgery, and different medications. Now I always thought that a Pain Management Clinic took over all of your medications in order to find something that works great for you. Not true, they pick what they do and are more like anesthesiologist. At least that's what I took from the explanation. Next we talked about Gamma Knife, this is a procedure where radiation is targeted at the nerve. The first question I had was if I would lose my hair, what a dumb question, the answer was 'no'. MVD was not on J's list to discuss. He has been against full brain surgery, the thought of them going into your skull for what might or might not work was something he did not like. I guess I just want to be better, I kind of play down the whole surgery thing. After talking, I guess we decided to try another medication to get some relief. I don't know what I think anymore, but no of it seems like that big of a deal to me right now in the moment.
We left with another prescription...now I know what everybody thinks. She's taking too many prescriptions already. My other choices aren't that favorable, at least not right now. As I add my 13th prescription, isn't 13 supposed to be lucky? This seems as an embarrassingly heavy amount to add to my daily regimen. But for anyone who has not experienced the TN pain, does not know how far a person who suffers will go.
Tomorrow I will be meeting with another TN patient, this will be good to talk to someone who is going through the same thing, if not more.
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