Atypical Trigeminal Neuropathy, Achalasia, Chronic Fatigue Syndrome, Anxiety, Depression, Panic Attacks, High Cholesterol, Insomnia, Chronic Pain, Thyroid Issues. (Past) Epstein Barr, (Past) C. difficile, Oh my what a life to live!
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Sunday, July 10, 2011
What My Body Doesn't Like
Saturday morning I was feeling ok. I mean I could feel the numbness from the prior pain but I was able to actually get up. I ate breakfast and took the Prednisone. Things went downhill very quickly from there. I was nauseous, my face and head was slamming in pain. I had the chills and again my eye was cloudy. I laid down and couldn't move until about 9:00 pm. I ate a PB&J sandwich but had to pull it apart because me teeth were in so much pain. I decided to call the pharmacy to see if the new Rx was counter-acting with everything else. They were closed. So I put in a call to Dr. R and Dr. T then waited. Dr. R called back first and he couldn't understand why the normal course of treatment is not working. He said that with the side effects it sounded as if my body was rejecting something that it normally makes. He said that I should talk to Dr. T. about an Occipital Nerve Block. But right now I needed to take benadryl to get it out of my system. I wish I would have called earlier in the day, I told J that I felt like I should have been laying on the floor, since it felt like I was hit in the face with a baseball bat. Guess what? We have every other drug known to man but no benadryl. J left to go to find an open pharmacy, thankfully we live in a 24/7 city and on Las Vegas Blvd he was able to find one open. Dr. T called and said to take one of the Tegretal 100mg chewables too. It was quite a list of medications that I took, one that made even me nervous, so I wrote J a list 'just in case' . Dr. T. said that we are going to be taking about 3 options on Thursday. The Occipital Nerve Block, Pain Management or Gamma Knife. Now I worry about my liver and taking all of the pills everyday is getting old. I am taking the morning pills at night and screwing up something so easy. Nerve Block and Pain Management are just band-aids in my eyes. The Gamma Knife scares the crap out of my. High powered radiation, that's not any better. I think that as this disease progress's it takes more of me. Today I took pain medication with breakfast along with 1/2 of a xanax. My friend S called and said that she saw something about Acai Juice. We went to Whole Foods to pick it up. I'll start it tomorrow and we'll see.
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