Whew! Pain and then when you aren't expecting it more pain! It isn't convenient, it isn't planned, it doesn't care where you are or who you are with, it just hits. I may not have a limp or be in a wheelchair, but I believe I am disabled. It it hard to deal with, emotionally, mentally and physically. I do what I can!
Years ago I wouldn't leave the house without make-up or my hair done. Now I don't care, I'm just happy if I can get out the door. And who really cares if I show up it pick M up without make-up? No one.
Monday I got a package in the mail from my Case Manager with my insurance. It had in there a list of resource's I could call for different things. So yesterday I started down the list calling the ones I thought I could get answers from. I stopped at the FDA, after I left a message. I don't really know why, but why not? I also got a call back from the office of the President from the Medical Association in Nevada. They would like me to write a letter telling why I think I have received bad medical care (or however you say that). I asked the lady if I could take excerpts from my blog because I don't remember exact feelings or days. She said that was fine, the more the better. So I'll be working on that.
Over the weekend I wrote letters to all of my doctors, present and soon to be past requesting my records. I also fired my social security attorney. I felt that she wasn't doing anything to help me. I sent all of these certified. I figured it was a way to get their attention. I also talked to a supervisor at SSA. She said that they can't do anything until there get the records from some of my doctors. They requested records from Dr. T, 2 times and now it is my responsibility to get them. I also told Dr. M that I will not be coming back. How else do I take control back. I made an appointment with a doctor that was listed as one of Nevada's top Neurologist. Tomorrow I have an appointment to see a new attorney. I wish J or my mom could be there.
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