Waiting sucks!
I got a call back from UCLA Neurology Department. Now they do things different from the surgery dept. They have to process the referral and then have some doctor look over it and decide which type of doctor to see. So they said to schedule with a 'Headache Specialist'. AAaaarrggghhhh! Are you kidding me? I asked why they felt that and he said that my new doctor only sent over visit notes from 1 time. I felt like I was going to just scream. The guy was nice and I told him if I sent all of my records would they re look at them. He said yes and to call him mid next week. So I called the Neurosurgeons office and they are in the same building as the other office and would send my packet over there. I am seriously getting no where! It's not UCLA's fault but it's the new doctor's fault.
Yesterday I got a letter from the Nevada State Board of Medical Examiners office. They are looking into my complaint about Dr. T and they will look at bringing her up to the committee or her licence? I don't know. But it's nice to know if you write a letter it doesn't just go into the trash. I have to call this lady and go from there.
Thursday was time for another step down on Tegretol. So I'm now at 400mg. I'm tired, I feel irritated, the pain comes and goes. Yesterday I felt like saying, "This is me giving up". But I don't know where to look for answers or help. On the 20th the TNA Association for Young Patients (Under 40) have a meeting. How to function with the disease, stuff like that. It's getting harder for me to see out of my left eye and so I guess I need to go see the eye doc. I came back home after dropping M off for school and back to bed. My ear hurt and I had some mild burning in my face. Mild Burning..LOL! I say it like nothing...mild burning.
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