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Sunday, October 11, 2015

Same Cold Different Day

  I can't seem to shake this cold I have. I'm at day 10 or 11 and it just now is seeming to let up.

  Went to the doctor a while back, since I can't get rid of my Thrush from when I had Epstein-Barr/Mono a couple of years ago. I just kept taking medicine it on and off for years now. They took a culture and are going to let it grow for 6 days . Then they want to do the scope thing since Dr. P (Internist) thinks it went down into in my Esophagus. Then it might be a more rare case. B asked if I could get on Medical Diagnosis. She's so weird.

   Then we went to Walgreens and used my debit card. It was declined 3 times (yeah I was THAT person). So we went back to the car and I pulled up my account on-line. It seems as if I set the auto pay for Home Depot to pay my statement balance of almost $1,500.00 instead of what I thought I was paying. The bank said it would take up to 10 days and Home Depot said it would take 4-6 weeks for a refund. So all and all that was a crappy day.

   My next appointment with Pain Doctor (Dr. C), she suggested that we should try to do Trigeminal Nerve Block. She was completely on my side about getting off of the Opana. She wanted to get started right away since I was in so much pain.

  We did the 1st block and it was very painful. I didn't know what to expect. But whatever happened was not what I expected. I was glad that she (Dr. C) had her partner Dr. N.P. pretty much do the procedure. He has taught at Harvard and was a part of The Cleveland Clinic, which is basically amazing. In which that's awesome in itself. So this nerve block didn't do anything for me, but I seem to be used that outcome unfortunately.

  I swore that I was not going to be put through that pain again. That should be my mantra "I'm not doing that again". I paid for that block for a good week. I guess I shouldn't say 'good'. So the next monthly visit with Dr. C, she brought up trying to do another block. I felt backed into a corner and was worried that if I said 'no' then would they help my in my quest of pain relief.

 Somehow I don't think it feels better the more they do!! We also made a decision to FINALLY end the Opana. That made me feel like a ROCKSTAR!! Dr. C gave me a low dose of Oxycodone & Clonidine (a withdrawal medication). That works for the sweats hot/cold, nausea and I'll spare you the rest of the fun. But I am very proud of myself. I take 42 pills a day. I have been going down on the Opana (Opioid) since last November. I've read bad things about it, and I finally did it!!!! I'm taking the withdrawal medication, which has helped some. But I'm finally off one one of my drugs!!! I did it!!!! There's one or two other's I think I don't need that I'm on, but one year at a time.
  Well after being under sedation one more time (4th time in a month) this time for a
EGD Esophagogastroduodenoscopy in which they did a couple of biopsies. That is where they put you under the care of an Anesthesiologist. He told me because I was on so much medication and my medical history was complex he was giving me 'The Michael Jackson Drug'. Taken under the right care it is very effective. He was right, I didn't feel a thing. The next day I was having chest pains and B & her boyfriend A took me to the ER. While I was there they did and Upper GI X-Ray series, chest x-rays, blood work, and an EKG. They gave me Dilaudid and with something to cut the acid in my stomach. I was still nauseous the entire time I was there so they gave me a "cocktail" made up of Maylox and Lidocaine that I had to drink. SO GROSS!! It made my throat numb. All of the chest pain caused my TN to flair up, but they wouldn't give me anything for my "chronic illness" as they said. My understanding is that as long as I disclose to Dr. C that I got something while in the ER it was fine. Or it was the middle of the day, they could have called the office and get the ok. So when I left I was still in pain.

 Finally I had an Esophageal Motility Study done. This is done while awake and they put a nasal electrode catheter. Horribly gross. They insert the catheter up your nose and then you have to drink water to swallow it. It just feels like there is something in the back of your throat. Until it gets all the way into my stomach. I guess my swallowing isn't working like it should?!? I'll get all of the answers on the 13th. This is just somthing else pills can do to you. Sure I go in for my liver and kidney check every 3 months but the result can be something rare like Achalasia they think.

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