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Saturday, August 27, 2011

My Pain Level Stayed at 16 All Week

    This week has been horrible, horrible on all levels!! The pain started intensifying on Tuesday. At this point I can't recall exactly how it started. I laid around feeling bad all day. Before I went to bed I took a pill for pain. I didn't sleep good and I know that this didn't really help things. Waking up Wednesday I felt a little bit worse. At this point I felt I had the pain under control. I wasn't able to do much on Wednesday either. My own personal hell! Wednesday night I took another pain pill, I have tried to avoid taking anything during the day. Being the only one here with M during the day I stayed with Ibuprofen 800mg on Tuesday but with no help I didn't take it on Wed.
    Thursday early morning I woke up before J. I thought I had been a victim of murder. I was confused or lost in pain. On this 3rd day of horrific pain, the selling in my collarbone was up and my arm felt if it was broken in half. I wanted to call Dr. T's office before they opened and leave a message. At 10 o'clock with no word back, I called again and the only man on staff said, "Oh yeah, what's wrong?" I explained to him my pain and he said he hasn't had a chance to see her yet. Finally 12:45pm, this girl calls back and says "You called?". Was it me, or what was wrong with this people. I explained to her, then she said so you was to see the doctor? I wanted to be out of pain, whatever. Then she said "Our 1st opening is next Wed at 1:30". I tried to explain to her the pain I was in. She didn't care.
    I had to get up on Friday, I had an appointment with an Endocrinologist. I have never before in my life sobbed in the shower. The water touching my scalp, my face, I leaned against the shower wall and cried my heart out in pain. I got myself together and made it to the doctor. He came in and knew I was in pain. So emotional I cried to him. He listened. But the pain I had wasn't his speciality. I decided to go there without asking my doctor. But this fight is about more than just waiting around! He told me that I was taking too much thyroid. He mentioned that after looking at my face shape, the pain in my arm and a few other things. Cushing's Disease. After giving me a new rx for a lowered thyroid, we made another appointment. In 4 weeks I will put this thing in my mouth to get saliva on it and place it back in the container. Then I will need to go at 8am the following day to get my blood taken. 2 weeks after that I will go in and we will do an ultrasound on my thyroid, then go from there.
    No facial pain is a part of this. This is separate, and in addition to my Atypical TN. After I got home it was after-hours for my neurologist. So I decided to call the after hours, I really wanted to talk with Dr. T. But guess who was on on-call for her. Crappy girl. Telling me again that she gave me the soonest appointment. Then suggested I just go to the ER. I said I'm not going to the ER. I've done that and they don't do anything. Beaten from the day I took pain medication at dinner. Then again before bed. I woke up on Friday in pain and nauseous. Remember to breathe.....1..2..3... Okay that's not helping. I guess until Wednesday when I can in to Dr. T's I will try to hang on the best I can.

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