My god, I've been pulling my hair out lately, I'm suprised that I have any left. After the whole E.R. mess I was so looking forward to this morning. I had another appointment with a neurologist. Dr. B. I go into these appointments everything laid out there. I don't want anyone to be able to later tell me that I should have told them something. Also I want everyone to know that although some of my medications are for nerve pain the only pain medication I have is Vicoden. I have had the same bottle of 40 pills since May. So I'm not doctor-hopping just to get more rx's.
J has gone with me to meet the past 2 doctors so that I wasn't alone. This morning the doctor came in and the 1st thing he said is 'I have reservations because you have been to see 2 other doctor's', right then did J say he could see a shift in his body language. Is wanting to see who can do the best by me a crime? I mean I'm sure they all sit in a few different cars before buying, it's no different. He did the usual 'follow my finger' tests and then said "I can't read you, what are you wanting?". I told him that I want to get off all of the medications. He kept talking about all how Trigeminal Neuralgia is crazy and it does what it wants. Then I said if the medications aren't working then why am I taking them? He said that if you stop them you could be in 10 times more pain then you are already in. He kept saying "I can't read you...". Here is this guy telling me that he basically doesn't what to help me. 3 adults and 1 child in a small exam room and none of us had a clue. He asked if I had any issues with the Tegretol and since I didn't he would up that and give me a referral to a neurosurgeon. First he had to check something and would be right back. A couple of minutes later the assistant comes back in and gives me the rx for the increased Tegretol (I still haven't even looked at it), and said that he'll refer me to Dr 1 and Dr. 2. J and I were lost. Why two seperate doctors? We asked her, fully knowing that she was just the messenger. That doctor didn't even have the balls to come back in. We were escorted to the check-out desk. Still asking why 2 doctors. Of course they didn't know. I asked if I needed to make another appointment and she said no. I don't understand, but I wasn't alone J was like "did we miss something?". I had tears in my eyes before we even made it to the door.
Here is what happens to you when you have something that nobody knows anything about. This is the way you are treated. Since leaving the E.R. I have felt sick to my stomach, and the only thing I got there was IV Fluids to hydrate me NO PAIN PILLS!!! Yesterday I called Dr. M, the guy who does the NUCCA treatment. I mean at least he won't give me anymore pills, I HOPE!! We talked a bit and he said that he would like a chance to help me by at least getting 2-3 treatments under the belt. I'm throwing my hands in the air.
As I dropped M off at school I noticed that I had a little chip in a tooth. Freakin' Great!!! And all of this before 9am. I called the dentist and not until next Thursday. It must be because of grinding my teeth at night. Is this what it feels like to be at the end of your rope? Can anyone tell me.
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