With the scar from my afternoon in the emergency room left on my hand from the I.V. I think how crazy it is that I was just there. I feel empty inside, no emotion about it. Going to Dr. M.'s was interesting on Friday. He is so friendly, and he knows I 'm unsure of the results. He told me you don't have to believe you just have to accept it. So I let him do him thing. His "thing" includes standing on two different scales, each foot on one to let him know which side is heavier. Then he busts out his protractor to measure the side of my neck. I can't really tell because I'm laying one my side. Then he takes his hand and pushes down on my earlobe and neck. Not too hard but just enough pressure to do whatever he does. This takes about 5 minutes. Then you go and rest on a big comfy recliner for a while. Then he took me back and asked how I felt. I said "If I'm supposed to feel like you smacked me then I guess I feel that ". So he has me lay down and he does the whole thing again. Then back up on the scales. After, he lets me go to the comfy room again. My reaction to this whole thing is questionable, but he can tell. He is from South Africa and this is where he first had it done to him after a sports injure. After that I'm released and scheduled for Tuesday another appointment. I mentioned to him that I have an appointment on Tuesday with a pain management doctor. He said to postpone it, so I did. But that makes me doubt a little, does he think this won't work himself? At least this time leaving his office I wasn't crying. I was sore but not in pain. I do have to admit that my energy level was higher than it had been in a long time.
I woke up this morning and I was sore. My collarbone was swollen again and I was really sore. Of course the stabbing sensation in my ear was present. I was excited to rest until J reminded me that today I had something special to do. This was the day that I had my 1st Las Vegas area TN support group. It was pretty far and 1/2 was there I was hit with anxiety, I was hot and shaky. All I wanted to do was get my Salted Carmel Hot Chocolate from Starbucks that I had planned. MMmmmm! This was a kind of crappy part of town, and I didn't know where anything was. Thank goodness for my Places App on my phone. *Note: J told me I could take drinks into the library. I haven't been in a million years. So I get to the library and right along side of the NO GUNS sign, it said it said NO DRINKS! Well you can see where I'm going.....I actually snuck my hot coco in.
I could share with you the entire meeting but I'll sum it up. There were about 7 people there and they gave information about things that are happening in the next 10 years with this illness. We went around the table introducing ourselves and I was 1st. I told everyone what I had been through and the medications I'm on. No one seemed to believe me since they were only given 1 of the medications for TN. Everyone had different stories but their paths were longer and less dramatic. But they seemed to accept this way of living, they were either retired or working/FMLA. No one had any success with neurologists in Southern Nevada. Two persons have had the Gamma Knife Procedure but are still on medications at a lower dose. That is very sad. So we will meet again in December.
So I'll soon be to my decision about where to go from here. UCLA called on Friday, and I told J that it will be the only time he will ever see UCLA calling for me. Ha Ha! But what do I do if Dr. M. doesn't work out?
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