I Just Want To Be Normal

I feel like crap! How else can I say?

Even though it's only Wednesday, it feels like a long week. On Monday I called the lady from the Medical Examiners office. She was nice and said that the Chief looked over my 5 page complaint letter and assigned it to her because they think it was serious enough. Well good, it's like I am checking that off of my list. She said I should find out something by February.

Yesterday was tough too. I had appointment with my Health Coach and he can hear the 'giving up' in my voice. He said if I'm not getting anywhere with UCLA's Neurology Department then I should look at my other options. He said it wouldn't be a bad idea to look into going back to Colorado for their Neurology Centers. So that will be my goal with him. I also got a letter from Social Security, and they want me and a representative payee to go in on Nov 30th. Hopefully it's good news.

On Sunday I was supposed to have a call-in with the TNA Young Patients. Yeah well, I forgot. J was outside and it's not that I was doing anything but laying in bed. I can't believe it. I listened to the recording they had. Something someone said was so true. No one can tell, because it is an invisible disease.  No one can tell what I feel like because I don't have a wheel chair or a bandage. It's hard to explain.

Everyone is in this high speed mode for Thanksgiving and Christmas. I'm just trying to BE. As long as the kids get what they want, that's all that matters to me. We plan to have a great dinner tomorrow and I will be thankful for that.