The Way it Is

The past 4-5 days have been pretty bad. Saturday and Sunday I didn't even get out of bed. At one point I was laying there and had to put a little bit of cotton in my left ear as to protect it from even the slightest it of air/noise. I'm down almost 5 lbs., I don't really eat that much, just enough to take my pills. It's hard not to be able to participate in...LIFE! As I drive M to school,  I watch parents as they walk their kids to school. I can't even remember how it feels to just get up and do whatever, whenever. It's always a plan, a hassle to get things done. I'm so stuck on the fact that going to sleep each night knowing when I wake up I'll be in pain.

I called Dr. S.D. (Neuro) office again and let her know that I called a couple of weeks ago and never heard back. She said I could come in at 11:45am, but I told her that I just took some pain medication and didn't want to drive across town. She said that she would talk to the Nurse Practitioner  and call me back. They just called and said that I should go back up to the 800mg since I'm having so much pain. This is very disappointing, because I tried to get off of some of the medication. :(

I made a call to a Neuro Institute in Colorado. They have about 50 docs. She is going to find out who is the best to see and call me back. I explained that I have seen many docs here and they all want me to go somewhere else. I have a TN Support Group meeting this weekend. I was really hoping that I would have something good to report back, but I have nothing at all.